Paediatric Primary Ciliary Dyskinesia Clinical Nurse Specialist

Job Overview

University Hospital Southampton NHS Foundation Trust is delighted to offer a fantastic opportunity to work with us.

Please see below for detailed job description of the role.

Main duties of the job

An exciting opportunity has arisen within Southampton Children’s Hospital’s, Children’s Respiratory Team for a dedicated registered paediatric nurse with leadership qualities to join our friendly, supportive multidisciplinary team as a Children’s Primary Ciliary (PCD) Nurse Specialist. We are pleased to offer a 30 hours per week as a permanent position.

Specific to this role we are open to discussing flexibility in the hours that you work. Please talk to us at interview about the flexibility you need, and we will explore what’s possible for the role and service.

About The Team

Southampton Children’s Hospital is a tertiary centre for providing specialist services including respiratory, cystic fibrosis (CF), long term ventilation (LTV), sleep and primary ciliary dyskinesia (PCD). For PCD, we accept referrals from across the Wessex region and the West Country. We are a cohesive multidisciplinary team working closely with other subspecialty teams to ensure the best outcomes for our patients and their families. We maintain close links with Southampton Centre of Biomedical Research leading and participating in exciting research projects locally, nationally and internationally.

Working f

or our organisation

University Hospital Southampton is one of England's largest acute teaching Trusts, offering a wide range of learning and development opportunities to support your career aspirations.

Located on the south coast with an international airport and direct rail links to London, Southampton offers an ideal setting to live and work, with the New Forest, South Downs and Jurassic Coast.

We believe that using technology wisely shows strong time management and commitment to innovation. However, personalizing your recruitment application to highlight your unique skills and experiences is crucial. Relying too heavily on generic, AI-generated content instead of drawing from your own strengths and accomplishments may lead to your application being rejected if multiple candidates present identical or similar information.

At UHS we’re committed to providing a flexible working environment where possible. Whether you are balancing family, study, or your wellbeing with your career, we want to support you so you can help our patients.

At UHS, we proudly champion individuality, recognizing that outstanding care is only possible with a diverse, inclusive team. We’re committed to creating an anti-racist, anti-discriminatory environment where everyone feels valued, safe, and empowered to make a meaningful impact in our communities. We welcome applicants of all backgrounds, identities, and experiences to join us in building a healthcare community where everyone can belong, thrive, and contribute.

Detailed Job Description And Main Responsibilities

As a Paediatric PCD nurse specialist you will work within the multidisciplinary team to deliver:

• Excellent care to our patients on an inpatient, day case and outpatient basis both locally and regionally.
• Regional clinics and home and school visits across the region as required.
• Assess, plan, implement and evaluate care of patients and their families
• Offer telephone advice to families and professionals across the region.
• Deliver parent education for children and families.
• Deliver education to professionals locally and regionally.
• Undertake Level 7 History Taking and Physical Assessment Course
  
  

What Experience/skills Are Needed

The applicant should be motivated, enthusiastic and able to demonstrates professionalism when working under pressure

You Will Be Expected To Show

• Sound leadership skills
• Good planning and organisation skills
• Full UK driving license is essential.
• Support and be able to motivate a team to provide safe care of the highest quality to all our patients and their relatives.
  
  

Applicants should have post qualifying experience in a relevant specialty which includes working in an acute paediatric environment. The applicant will be expected to show good co-ordination and leadership skills participating in workload planning and coordination of care of patients within our caseload.

Person specification

Qualifications, Knowledge And Experience

Essential criteria

• Registered nurse on relevant part of the NMC register
• Degree qualification or equivalent 120 credits at L6
• Post registration qualification within area of speciality or equivalent experience
• Completion of all Band 5 (preceptorship) competencies
• Provide evidence of supporting /Managing a range of learners in practice
• Provide evidence of supporting colleagues to promote effective learning in practice
• Extensive post registration experience within specialist area
• Knowledge of current issues within the acute health service
• Understanding of personal accountability
• Confident of own knowledge base, aware of learning needs and seeks guidance when appropriate
• Able to critically review and communicate clinical information
  
  

Desirable criteria

• Registered on MSc Pathway, completion of HTPA competencies
• Act in the role of Practice Assessor or supporting the progression of learners / Supporting challenges as needed
• Counselling qualification
• Palliative care course
• IT training
• Change Management, Clinical Practice Development

Multidisciplinary team working

Interest in nurse –led care

Organisational / Strategic awareness

Clear about professional accountability and autonomous practice components of role

Trust Values

Essential criteria

• Patient First
• Always Improving
• Working Together