Paediatric Epilepsy & Neurodisability Clinical Nurse Specialist Band 6
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Take the next step in your nursing career and make a real difference to the lives of children and young people. Join our Paediatric Epilepsy and Neurodisability Service, where your work is meaningful, your input is valued and no two days are the same.
You will provide expert nursing care, clinical leadership and specialist support to children and young people aged 0-18 living with epilepsy and neurodisability. Working both autonomously and as part of a skilled multidisciplinary team, including Neurodisability Consultants and Specialist Nurses, you will support patients to thrive beyond their diagnosis.
A key part of the role is supporting families to manage complex conditions at home wherever possible, tailoring care to individual needs, optimising medication, and prioritising quality of life. We are proud to be a PAFTA Team of the Year Runner Up, reflecting our commitment to excellence, innovation and teamwork.
The role is varied and rewarding, including nurse-led clinics, first seizure safety education, emergency medication training, and support for transition to adult services. You will also work closely with learning disability and adult epilepsy teams to ensure seamless care. This is an opportunity to influence service development, contribute to meaningful projects and help shape pathways of care, all within a supportive team committed to delivering outstanding patient care.
Job description
Provide expert nursing advice and support for children and young people with epilepsy and/neurodisability.
- Undertake specialist assessments, critically analysing complex information to inform care planning.
- Support the diagnostic process, ensuring families receive clear, compassionate communication and appropriate signposting.
- Act as the first point of contact for families reporting deterioration or concerns.
- Liaise with ward teams and consultants during acute admissions to ensure continuity of care and timely discharge.
- Provide support and guidance in endoflife care, including involvement in Advance Care Planning and ReSPECT processes.
- Facilitate smooth transitions between services in line with Trust policy.
- Ensure clinical practice is evidencebased and aligned with national and local guidelines.
- Maintain accurate and timely documentation using Trust electronic systems.
- Work collaboratively within the multidisciplinary team, recognising and valuing the roles of all members.
- Maintain professional registration and adhere to the NMC Code at all times.
Person specification
Qualifications and Training
Essential
- RSCN/RN (Child) with NMC registration
- Teaching/assessing qualification.
Desirable
- Non-medical prescribing qualification or willingness to work towards
Knowledge and Skills
Essential
- Able to prioritise own workload and that of others
- Resilient and able to manage complexity
- Excellent communication and interpersonal skills
- Ability to maintain and develop standards of practice
- Strong clinical reasoning and decision-making skills
Desirable
- Awareness of professional issues influencing practice
- Ability to contribute to policy and guideline development
Clinical/Experience
Essential
- Experience working with children and young people with epilepsy and neurodisability
Personal Attributes
Essential
- Enthusiastic and self-aware
- Resilient under pressure
- Team focused
- Reliable, adaptable, and dependable
Desirable
- Creative and Flexible
About the employer
Gloucestershire Hospitals provide acute hospital services from two large district general hospitals, Gloucestershire Royal Hospital and Cheltenham General Hospital, as well as maternity services at Stroud Maternity Hospital. With a team of over 9,000 employees, representing over 95 nationalities, we are proud to be the largest employer in Gloucestershire. We take pride in placing people at the centre of everything we do, working together as a united team. Driven by a shared ambition to continually grow, develop, and learn, we recognise and value every contribution.
Our service is a collaborative, multidisciplinary team comprising a Neurodisability Medical Team of eight clinicians (three with a specialist interest in epilepsy) and a dedicated Epilepsy & Neurodisability Nursing Team, including one Band 7 Lead Nurse Specialist and two Band 6 Nurse Specialists.
The service operates across Cheltenham General, Gloucestershire Royal and community hospitals throughout Gloucestershire, delivering a range of specialist clinics including dedicated epilepsy clinics (including first seizure clinics), nurse-led epilepsy clinics, and consultant neurodisability clinics supported by Nurse Specialists.
The team works closely with acute paediatrics, community services, therapy teams, education providers, and tertiary centres to ensure integrated, patient-centred care. We are a small, friendly team working Monday to Friday, with a strong focus on maintaining a healthy work/life balance.